Hello everyone,
I hope all my fellow Canadian friends had a lovely Thanksgiving weekend. I know I have been missing for awhile and I had planned to do a post and let you know I would be gone but I was just too busy. My husband Andrew and I went to Quebec for a week partly for a holiday and partly to meet up with our daughter Jen and her youngest son Lucas who was going to Montreal for a drug trial.
Lucas is six years old and he was diagnosed with Duchenne Muscular Dystrophy when he was only two years old.This terrible disease attacks all the muscles of the body causing a lack of mobility at a young age.
Lucas is a very sweet and lovable little boy and our prayer is that there will be a much better treatment and hopefully a cure in the not too distant future for Lucas and all the other boys affected by DMD.
There is a new drug that has been showing promise for slowing down the disease and our prayer is that if this drug is safe and effective, Lucas will be acccepted into the trial .This would mean Lucas and Jen fly to Montreal once a week for 52 weeks for an injection and of course checking Lucas for any negative side effects. Lucas has had his first visit and it went well so he has two more hurdles to pass before he is acccepted into the trial. So my request is that you would please keep Lucas and his family in your prayers and that someday soon the future will look much brighter for all the boys and their families who are afflicted by DMD.
I hope all my fellow Canadian friends had a lovely Thanksgiving weekend. I know I have been missing for awhile and I had planned to do a post and let you know I would be gone but I was just too busy. My husband Andrew and I went to Quebec for a week partly for a holiday and partly to meet up with our daughter Jen and her youngest son Lucas who was going to Montreal for a drug trial.
Lucas is six years old and he was diagnosed with Duchenne Muscular Dystrophy when he was only two years old.This terrible disease attacks all the muscles of the body causing a lack of mobility at a young age.
Lucas is a very sweet and lovable little boy and our prayer is that there will be a much better treatment and hopefully a cure in the not too distant future for Lucas and all the other boys affected by DMD.
There is a new drug that has been showing promise for slowing down the disease and our prayer is that if this drug is safe and effective, Lucas will be acccepted into the trial .This would mean Lucas and Jen fly to Montreal once a week for 52 weeks for an injection and of course checking Lucas for any negative side effects. Lucas has had his first visit and it went well so he has two more hurdles to pass before he is acccepted into the trial. So my request is that you would please keep Lucas and his family in your prayers and that someday soon the future will look much brighter for all the boys and their families who are afflicted by DMD.
We are thankful that there is hope for better future and that Lucas has such a sunny little personality and just enjoys life.Lucas has also been blessed with two very loving parents and two older brothers that love him to bits!
Thank you to all who take the time to say a prayer for Lucas as we do believe in the power of prayer!
I will be back soon to share some lovely photos of Quebec City-it is such a beautiful old city. We have a couple of house and garden tours this week and then it will be time to start putting the garden to bed for the winter.Does it not seem like only yesterday the tulips were coming up???
Hope you have a great week.
Carolyn
Sweet Lucas...I know all to well what you are going through...it is just not fare that a sweet and inocent child should have to fight so hard :-(
ReplyDeleteLucas will be in my prayer!
Take care,
Anette in Sweden
i am praying that your sweet young boy will find a cure to pass on to all the others...
ReplyDeleteHello Carolyn
ReplyDeleteSuch a sweet little boy to have health problems like this.
Consider your prayer chain to have reached Ontario.
Judith
Tonight a special prayer for Lucas...
ReplyDeleteKatia.
Midge and I have been thinking of you and Andrew, and, of course, Jen and Lucas and family every day since you left for Quebec, Carolyn.
ReplyDeleteWe are relieved to know that things went well for Lucas this week. We will most definitely keep you all in our prayers.
We are glad that you are home safe and sound. I missed you! SMILE.
Hugs,
Linda at Beautiful Ideas
Yes, I will remember you sweet grandson in prayer..praying for effective treatment.
ReplyDeleteI will pray for you little boy...
ReplyDeleteI really hope that Lucas will be accepted onto this drug trial and that it will be succesful - he will be in my thoughts.
ReplyDeleteOh Caroline,con piacere dirò una preghiera per il tuo bel nipotino!Mi dispiace che i bimbi debbano soffrire.Per fortuna che la medicina va avanti!Vi auguro ogni bene,Rosetta
ReplyDeleteWhat a precious little boy. I will certainly remember him in prayer.
ReplyDeleteCount me in..He will be in my prayers.
ReplyDeleteOur Lucas is six.
Your Lucas is adorable.I know what this means to you as a nana.
He must love everything you do for him Carolyn..All the special attentions..Your beautiful home..
I am certain he has wonderful parents and siblings..Our Lucas has 2 brothers also.
I hope he is accepted and the treatments are beneficial..and halt the disease for him.
I will pray that God puts his wisdom in your doctor's hands.
Love,Moniquex
I will be thinking and praying for Lucas.Blessings Catherine
ReplyDeleteOHHH what a beautiful boy, my prayers are with him and his loving family :)
ReplyDeleteMy very close friend has a son who a very rare form of this illness!!!!
So this is near and dear to my own heart!!!
xo~Mari
I will send many prayers up for young Mr. Lucas. I have a small blog that no one but myself pays attention to however I do enjoy looking at so many wonderful blogs such as yours and this story just touched my heart. Will keep you all in thought and prayer.
ReplyDeleteBless his heart! Heather had mentioned to me that he would be going to Montreal for tests. Being afflicted with MD myself, I know how devastating the disease can be, especially for a child. I will pray for Lucas and his whole family. God bless you all!
ReplyDeleteBlessings,
Sandi
Your gorgeous little grandson is in my heartfelt prayers, Carolyn!
ReplyDeleteMay the Lord undertake mightily for him - and all the other precious children who need His healing today and hope for the future!
blessings..Trish
Hi Carolyn,I'm praying for your beautiful lucas.I pray they find a cure for him.
ReplyDeleteKathy
I shall be praying for Lucas and your family. Please keep us posted regarding his progress. We care!
ReplyDeleteKay Moser
Lucas is such an adorable little guy. Many thoughts and prayers for Lucas and your family. hugs ~lynne~
ReplyDeleteDear Carolyn
ReplyDeleteLucas is a darling little fellow and my heart goes out to him and his mom Jen - once our sweet babysitter! :) I'll join in with all your praying friends as we lift Lucas, his mom and dad and the whole family to our loving Heavenly Father's tender care. Many many blessings to you and the family.
Carolyn,
ReplyDeletetenho acessado todos os dias seu blog e não sei explicar, mas eu estava muito preocupada com você e sua família. Hoje pensei muito em vocês, até comentei com uma amiga, apesar de não ti conhecer e estar tão longe. Estarei orando pelo Lucas e pela sua bela família. Fiquem com Deus.
Lauriane - Macaé - RJ - Brasil
I am so sorry to hear about your sweet grandson Lucas's illness and will be praying for him. I hope he is accepted into this program for his healing. God bless you all. Hugs, Pam
ReplyDeleteI'll send up a little prayer for Lucas, his family, and the medical team.
ReplyDeleteSending lots of hugs and prayers for Lucas. Thanks for sharing this with us - prayer is a powerful thing the more the better. Lots of hugs for you.
ReplyDeleteEvi
Good evening Carolyn
ReplyDeleteI will hold little Lucas in my thought & prayers.. What a sweet little fellow he is! Take care my PEI friend! Hugs from Saskatchewan.
Wanda
Sending prayers and hugs your way friend:)
ReplyDeletexo,
Abby
Carolyn, Lucas and your entire family will be in my prayers. Your daughter will be going through so much right now and through the trials so she will be in my thoughts and prayers with all she and Lucas travels.
ReplyDeleteIt will be wonderful if the new drug is a great success and will help children all over the world.
hugs from here...
Will definately be praying for Lucas and your whole family. What a doll he is!
ReplyDeleteWhat a sweet little boy. I will pray for him tonight.
ReplyDeleteI will keep Lucas in my prayers. He's such a dear little fellow and deserves the best life can offer. i just dropped by to wish you a Happy Thanksgiving ...
ReplyDeleteHe is in my prayers I have just said a prayer for him I truely hope all goes well for him and the new drug does help slow the progress of this horrible condition
ReplyDeleteHe is darling! I will be praying for him tonight and hoping for the best for him and your family. xxoo
ReplyDeleteAnother voice is now being lift up to our Heavenly Father in behalf of Lucas... He is under His care. Trust and believe. May you all be blessed.
ReplyDeleteCielo
Dearest Carolyn,
ReplyDeleteWhat a touching post... My heart and prayers go out for him and all others that need this treatment.
Love to you,
Mariette
I will put little Lucas on my prayer list! What a sweet young man ..hoping the best for him!!
ReplyDeleteMiss Bloomers
Oh my goodness, Carolyn....Lucas is such an adorable boy. Of course I will pray for him. Susan
ReplyDeleteI will indeed pray for your dear little Lucas.
ReplyDeleteDear sweet Carolyn, I always look at your beautiful blog and enjoy your amazing photography!!!! Please know I will keep your precious Lucas in my prayers for healing ~ hugs and love, Dawn
ReplyDeletei will keep your sweet Lucas in my prayers Carolyn..
ReplyDeleteHi Carolyn
ReplyDeleteMy prayers will include your lovable Lucas. I hope for him, that finally there will be a medicine to cure that illness.
Take care
Alex
Carolyn,
ReplyDeleteLucas and your whole family will be in my prayers!
Hugs,
Debbie
My dearest Carolyn,
ReplyDeleteI will pray for your sweet Lucas every single day.
He looks so happy in his hotel room and that's a good start:a serene child reacts better to drugs.
Blessings,
Fra
Carolyn, our thoughts and prayers are with you and your family. Of all the blogs I visit, yours is my favorite in so many ways. The music is lovely. The garden scenes. The flowers. Especially the pink roses. The pretty dishes you use in your pictures. All these things and I'm sure there are other things I have failed to mention, are the essence of "Me".May God be with you and your family through it all.
ReplyDeleteWhat a cutie. Certainly will be sending prayers for him. Good luck to you all. xx
ReplyDeletethere are few things as distressing in life as sick child i wish the best for him
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteDear Carolyn,
ReplyDeletePrayers for Lucas, for Jen and for you from Romania.
I will keep Lucas (his name) in my mesa (medicine bundle), if you agree.
Please let us know when he gets better. And also when he becomes healthy "in full: :))
Hi Carolyn,
ReplyDeleteSo sorry to hear about Lucas. I will keep him in my prayers. I know he will be alright...
Hugs Rosemary...x
I will hold your Lucas and your family close in my heart and prayers.♥
ReplyDeleteOh Carolyn, I was soooooooo saddened to read this post about this beautiful little boy. I will definitely keep little Lucas in my thoughts and prayers. {{{HUGS}}} to you too.
ReplyDeleteCarolyn/A Southerners Notebook
Dear, dear Carolyn, I will pray for Lucas with all my heart.
ReplyDeleteHELLO DEAR CAROLYN MY HEART BREAKS TO KNOW ABOUT THE MEDICAL CODITION OD SWEET LUCAS I KNOW EXACTLY WHAT HE HAS,I HAVE SOMETHING SIMILAR SEVERE R.A.AND THERE IS NO MEDECINE THAT MY ODY WILL TAKE AFTER MY B.C.TREAMENTS AND RADIATION I JUST WENT TO STANFORD MEDICAL CENTER, AND NO GOOD NEWS.MY STARTED 6 YEARS AGO.I PRAY FOR LITTLE LUCAS I WILL KEEP HIM CLOSE TO MY HEART AND PRAYERS ALSO HIS FAMILY AND YOU IS HARD CAROLYN,GOD WILL HEAL HIM.ALWAYS LET US KNOW ABOUT HIS PROGRESS..I CARE FROM THE BOTTOM OF MY HEART.A BIG HUG FOR SWEET LUCAS....BLESSINGS ..SANDRA
ReplyDeleteI'm so sorry for Lucas and we can only hope they will get a cure for him, and the other boys, soon.
ReplyDeleteLove Elzie
Carolyn,
ReplyDeleteI think of Lucas and pray for him.
Mariana
Well Lucas is in for a very big adventure for the next while. I hope all goes well and he is to have some relief. V
ReplyDeleteI will absolutely keep Lucas in my prayers, Caroline. What a darling, sweet boy. I hope that he gets accepted into the trial and that it does wonders for him. Positive thoughts for him and your entire family.
ReplyDeleteAs I kneel to speak with Jesus, I will say prayers for Lucas and for your family as well.
ReplyDeleteDear Carolyn,
ReplyDeleteI have just come across from Mariettes blog.
Just want to say my thoughts and prayers go out to sweet Lucas and your family.
Sending hugs
Carolyn
Prayers for sweet Lucas sent and more prayers that the trial will be a success. Amen
ReplyDeletePrayers and hugs all the way from South Africa to Lucas and your whole family.
ReplyDeleteHe is adorable.
Shel x
Hello Carolyn, I never wanted to read this post. I did not know of the problems of Lucas. I'm so sorry. Sometimes life is unfair. Children should only think about playing and not to be subjected to these terrible trials. Little Lucas will always be in my prayers. I will ask my cousin Barbara to pray with me. She is a nun, thus extending the chain of prayer also to all her sisters. I embrace you tightly. Gilda
ReplyDeleteCarolyn, my mama's heart and best wishes go out to your precious Lucas!
ReplyDeleteWe had our first frost, this week. I can't believe it's autumn, either - where did the time go? So much to do in the garden, though - still! =]
Love to you!=]
Katy Noelle
Prayers for precious Lucas. Hard on his mama and family as well. May you all have strength. Sending positive thoughts and good wishes up to you from Florida.
ReplyDeleteThank you for the beauty you share with all of us. Everything you do is breathtakingly gorgeous.
I know prayer works......we are all praying!!
ReplyDeletexo
Jo
We will be praying for Lucas. His life is in the hands of the Lord, the Doctor of doctors!!... kisses...
ReplyDeleteYou can count me in, too. I will remember Lucas when I pray.
ReplyDeleteHugs, Cindy
Will be praying for all of you especially little Lucas.
ReplyDeleteMay God touch his little body and heal him this side of Heaven.
d
My prayers are certainly with dear sweet little Lucas and his parents as well as they go through this tough time , I sure hope this drug will help him and that a cure is in the very near future. God bless.
ReplyDeleteDear Carolyn,
ReplyDeleteWe are praying for Luke and his entire family, so they can face with courage this step. You are kept in our hearts.
Cidinha
Hugs from Brasil
What a cutie! He looks like a red head! My two are red heads, so I am partial to them!
ReplyDeleteI pray for wisdom for you all as you make this step. I do hope the drug will be a success in slowing the disease.